<pd4ml-page-break><div class="container_title"><h1>Privacy Policy</h1></div><div class="container_content"><strong>General:</strong> This “Privacy Policy” describes the privacy practices of the Michael J. Fox Foundation for Parkinson’s Research (MJFF), a 501(c)(3) non-profit organization. Whenever we process your personal data, we always endeavour to do so responsibly and in compliance with the law. This Policy explains how we process your personal information and the choices you can make about what information you provide, how your data is collected, and how it is used when using the <strong>MJFF Grant Portal</strong> (Grant Portal). <br> <br> MJFF has partnered with the Coalition for Aligning Science LLC (CAS) on the Aligning Science Across Parkinson’s (ASAP) funding initiative. This partnership enables ASAP to leverage MJFF’s grant administration and grantmaking infrastructure to receive applications, administer the review process and make grant awards to projects selected for ASAP funding. This Policy, therefore, is applicable to grants, applications, and information provided through the Grant Portal for ASAP purposes as well as MJFF purposes, and MJFF may share any information about you or your research project with CAS in the joint administration of MJFF and ASAP's funding programs.<br> <br> Where information is processed for grants unrelated to ASAP, MJFF is the sole data controller of your personal information. Where information is processed for grants related to ASAP funding, MJFF and CAS will be joint controllers of your personal information.<br> <br> <strong>Data Collection</strong>: We may collect your personal information in a number of ways, including:<br> <br> • Directly from you when you enter your details directly into the Grant Portal;<br> • Indirectly where a colleague at your institution provides us with your details in the Grant Portal as part of an application;<br> • From cookies and similar technologies when you are using the Grant Portal; and<br> • When we interact with you in other ways such as by phone or email<br> <br> During the course of our dealing with you, we may collect the following personal data:<br> <br> • Name;<br> • Contact details (email, phone number etc.);<br> • Professional information (role, institution, researcher ID etc.);<br> • Marketing preferences; and<br> • Bank details (only where payment is made directly to you and not your affiliated institution).<br> <br> <br> <strong>Purposes and Uses</strong>: We only collect personal information about you where we have a legitimate reason for doing so and to further our mission to serve Parkinson’s disease patients and work with the Parkinson’s disease scientific research community. For each purpose for processing, in accordance with EU and UK law, we have identified a lawful basis for processing. <br> <br> <strong>Contract </strong>– We need to collect certain information for the purposes of performing a contract that we have entered into with you. For example:<br> • To administer our grant funding contracts.<br> <br> <strong>Legitimate Interests</strong> – We process individuals’ personal information in pursuit of our legitimate interests to:<br> • Respond to any queries or concerns sent to us;<br> • To manage the grant application process and make decisions around whether to award funding;<br> • Help maintain the security and performance of our Grant Portal.<br> <br> <strong>Legal Obligation</strong> – We are under a legal obligation to process certain personal information for purposes including:<br> • To comply with financial record keeping obligations in relation to recipients of grant funding.<br> <br> <strong>Consent</strong> – In some circumstances, we may ask you for your consent to process your personal information. This is usually to:<br> • Send you relevant information about our programs and services that you have signed up to receive; <br> • Use marketing and analytics cookies on our Grant Portal; and<br> Submission of the information listed above is voluntary; however, in order to be able to fully consider any application you make, most fields are required. <br> <br> <strong>Sensitive Data</strong>: Alongside the personal information listed above, we also ask in the Grant Portal that you provide us with demographic information (race, gender identity, disability status etc.) about yourself. These types of personal information are considered particularly sensitive under some laws, and so we make providing us this data completely voluntary, based on your consent. The purpose of collecting this data is to monitor the existence of any bias in the selection process by collecting, aggregating and analysing this information to try to ensure equality of opportunity and treatment.<br> <br> <strong>Data Sharing</strong>: We may share your personal data with the following categories of third party organisations:<br> <br> • CAS, for the purposes of the joint administration of the ASAP funding initiative; <br> • External reviewers, for the purposes of reviewing research proposals and providing feedback; and<br> • Law enforcement authorities, courts, and other governmental authorities where required by law or to assert or defend our rights.<br> <br> We will also share your personal information with carefully selected third party data processors/service providers who perform services on our behalf. For example, MJFF uses a third party, SmartSimple, to administer the information that is obtained through your use of the Grant Portal. In addition, we use third party website analytics providers, and DocuSign as our eSignature platform. These organisations will not use your personal information except to provide the agreed services on our behalf. We ensure that we have the required agreements in place to safeguard your personal information and all third parties are required to maintain the confidentiality of your information.<br> <br> Where we share the personal information of individuals located in the EU or UK with other third parties located in the US or otherwise outside the EU or UK, we ensure that we implement appropriate transfer mechanisms to ensure that your personal information is adequately protected. This includes implementing standard contractual clauses.<br> <br> Aside from the above, we do not sell, rent or otherwise give your personal information to third parties.<br> <br> <strong>Retaining Data</strong>: We only retain information for as long as is necessary to achieve our purposes, after which time it is securely destroyed. Your personal information will be retained in accordance with our Retention Schedule which outlines for how long we keep different types of personal information. Our retention periods are based upon the purpose for with the information is collected and used, taking into account legal and regulatory requirements to retain the information for a minimum period, good practice, and our legitimate interests.<br> <br> <strong>Security</strong>: Following login by an account holder, the associated grant-related information submitted by the user is collected, maintained, and disseminated through secure interfaces. Smart Simple and its hosting partners are SOC 2 complaint (SOC 2 is the most recognized compliance criteria for cloud vendors around the world). Furthermore, Smart Simple is compliant with the standards for PCI DSS Level 3, FIPS 140-2 encryption, and data in motion is encrypted using HTTP (Hyper Text Transfer Protocol) protocols combined with TLS (Transport Layer Security) ciphers to ensure security when transferring data. Information is also provided securely to the account holder, including the results of peer review, and the deliberations of the Grant Review Committee established by MJFF to review the grant application. Except for internal administrative purposes, the grant application is treated as confidential until an award is made. Upon award, the title, principal investigator name(s), abstract of the project, award amount are disclosed publicly.<br> <br> <strong>Your rights</strong>: Depending upon where you are located, you may have some or all of the following rights in relation to your personal information: <br> • ask for access to your personal information via a 'subject access request';<br> • ask for personal information we hold about you to be corrected;<br> • ask for your personal information to be deleted. This enables you to ask us to delete or remove your personal information where there is no good reason for us continuing to process it;<br> • object to the processing of your personal information where we are relying on a legitimate interest, and there is something about your particular situation which makes you want to object to processing it;<br> • ask for the processing of your personal information to be restricted. This enables you to ask us to suspend the processing of personal information about you; and<br> • ask for your personal information to be transferred to another company.<br> To protect your privacy and security, we will take certain steps to verify your identity before granting access to your information or complying with other requests. You will be asked specific questions, including full name, address, phone number, and, if applicable, credit card numbers and/or expiration date. <br> <br> If you would like to exercise any of the above rights, you can do so by emailing privacy@michaeljfox.org or calling +1 212 509 0995. <br> <br> Where we rely on consent to process your personal data, you have a right to withdraw your consent at any time. To withdraw your consent to receive marketing emails from us, you can visit your Profile Center via a "Manage My Preferences" link at the bottom of all Foundation emails.<br> <br> <strong>Contacting Us</strong>: MJFF values your comments and opinions. If you have comments, questions or concerns about our privacy policy or if you would like access to the personal information you have provided, contact us via grants@michaeljfox.org. Please allow 2-3 business days for a reply. When inquiries are emailed to us, the question/comment/opinions and the e-mail address information are stored so that an electronic response can be composed and sent.<br> <br> You can also contact our Privacy Team using the details below:<br> <br> privacy@michaeljfox.org<br> <br> The Michael J. Fox Foundation for Parkinson's Research<br> Grand Central Station<br> P.O. Box 4777<br> New York, NY 10163-4777 <br> <br> To help facilitate the exercising of data protection rights by data subjects located in the UK and EU, we have appointed The DPO Centre Ltd and The DPO Centre (Europe) Ltd to act as our UK and EU Representatives, respectively. <br> <br> Our UK Representative can be contacted using the following details:<br> The DPO Centre Ltd<br> 50 Liverpool Street, London, EC2M 7PY<br> Phone: +44 203 797 1289<br> Email: eurep@michaeljfox.org <br> <br> Our EU Representative can be contacted using the following details:<br> <br> The DPO Centre (Europe) Ltd<br> Alexandra House<br> Ballsbridge Park, Dublin, D04C 7H2, Ireland<br> Phone: +353 1 631 9460<br> Email: ukrep@michaeljfox.org <br> <br> Where you are located in either the UK or the EU, you also have the right to complain to your local data protection authority if you are unhappy with how we have processed your personal information. For example, in the UK this is the Information Commissioner’s Office who can be contacted via this link.<br> <br> <strong>Conditions of Use, Notices, and Revisions</strong>: From time to time, MJFF conduct internal audits of its information practices and reserve the right to make changes to this policy. Changes to this Policy are also made to comply with evolving legal and regulatory requirements. MJFF reserves the right to make changes to this Policy at any given time. We advise you to visit this page frequently to make sure that you are up to date with the latest changes. If at any point in time MJFF decides to make use of any personal information on file in a manner vastly different from that which was stated when this information was initially collected, the user or users shall be notified by email.<br> <br> Last updated May 2024.<br> </div><pd4ml-page-break><div class="container_title"><h1>Terms of Use</h1></div><div class="container_content"><u>Introduction</u><br> The Michael J. Fox Foundation for Parkinson's Research (“MJFF”) is a nonprofit organization dedicated to finding a cure for Parkinson's disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson's today. We facilitate grantmaking by maintaining a secure infrastructure through which confidential information can be transmitted for the purposes of soliciting grant proposals (“Project Materials”), managing active grant awards, and/or soliciting reviews from external experts (“Reviewers”). This infrastructure is held at https://grants.michaeljfox.org/s_Login.jsp (referred to as both the “Website” and “GrantPortal”). The Website is intended for primary use by grant reviewers, applicants, recipients, as well as associated personnel who are conducting research. Other users include MJFF staff who direct and oversee MJFF operations, as well as Contractors who may assist them. These Terms refer to these collective parties as “users” and “you”.<br> <br> These Terms of Use describe the conditions under which MJFF supports the access and use of its GrantPortal.<br> <br> 1. Agreement<br> In order to use the GrantPortal, you must agree to the Terms of Use outlined here. If you are not in agreement, you should refrain from further use. Our Privacy Policy, which is incorporated by reference into these Terms of Use, explains how we treat your personal data and your privacy when you use the GrantPortal. By using the GrantPortal, you agree that MJFF can use such data in accordance with our Privacy Policy.<br> <br> 2. Changes to these Terms of Use<br> We may modify these Terms of Use from time to time by posting a revised version on the GrantPortal Website. Any modification made is effective immediately upon posting the modification (unless otherwise stated). If there is a conflict between these Terms of Use and the updated and/or additional terms and conditions, the updated and/or additional terms will apply. You should visit this page periodically to review the current Terms of Use. Your continued use of the Website after the posting of such new Terms of Use means that you agree to the posted changes. If you do not agree to the changes, you should discontinue use of the Website.<br> <br> 3. User Accounts<br> a. Sole Responsibility: In order to access the Grant Portal, you must register to create an account using an email address and selected password (“Login Credentials”). You agree not to share or disclose Login Credentials with anyone AND not to use the Login Credentials of another individual. You agree to use reasonable care when safeguarding systems and equipment to prevent unauthorized use. You also agree to provide accurate and complete information when creating this account. You agree to be accountable for all <br> b. Termination of Use: We may in our sole discretion suspend or terminate your access to the Platform without notification for violation of the Terms of Use, or for other conduct that we deem harmful or unlawful to others. We may also periodically review accounts for which a user has not logged on.<br> 4. Your representations and warranties<br> You represent and warrant to MJFF that:<br> a. All information and/or content that you provide in the Grant Portal are true, complete, and accurate to the best of your knowledge. <br> b. If you are participating in the grant review process:<br> i. you will use no less than reasonable care in protecting Confidential information from disclosure to third parties that are not participating on the grant review committee.<br> ii. you will delete and/or dispose of Confidential information when it is no longer necessary for the purposes of your assessment.<br> c. If you are applying for funding:<br> i. you will use the provided templates and/or application materials where requested and avoid use of previously provided templates and/or materials as they may be outdated. <br> <br> 5. Contact Us<br> If you have questions or comments concerning these Terms of Use, you may email us at grants@michaeljfox.org. Support is provided in English only.<br> <br> These Terms of Use were last updated on May 23, 2024.<br> </div>
Language
English (US)
Privacy Policy
General:
This “Privacy Policy” describes the privacy practices of the Michael J. Fox Foundation for Parkinson’s Research (MJFF), a 501(c)(3) non-profit organization. Whenever we process your personal data, we always endeavour to do so responsibly and in compliance with the law. This Policy explains how we process your personal information and the choices you can make about what information you provide, how your data is collected, and how it is used when using the
MJFF Grant Portal
(Grant Portal).
MJFF has partnered with the Coalition for Aligning Science LLC (CAS) on the Aligning Science Across Parkinson’s (ASAP) funding initiative. This partnership enables ASAP to leverage MJFF’s grant administration and grantmaking infrastructure to receive applications, administer the review process and make grant awards to projects selected for ASAP funding. This Policy, therefore, is applicable to grants, applications, and information provided through the Grant Portal for ASAP purposes as well as MJFF purposes, and MJFF may share any information about you or your research project with CAS in the joint administration of MJFF and ASAP's funding programs.
Where information is processed for grants unrelated to ASAP, MJFF is the sole data controller of your personal information. Where information is processed for grants related to ASAP funding, MJFF and CAS will be joint controllers of your personal information.
Data Collection
: We may collect your personal information in a number of ways, including:
• Directly from you when you enter your details directly into the Grant Portal;
• Indirectly where a colleague at your institution provides us with your details in the Grant Portal as part of an application;
• From cookies and similar technologies when you are using the Grant Portal; and
• When we interact with you in other ways such as by phone or email
During the course of our dealing with you, we may collect the following personal data:
• Name;
• Contact details (email, phone number etc.);
• Professional information (role, institution, researcher ID etc.);
• Marketing preferences; and
• Bank details (only where payment is made directly to you and not your affiliated institution).
Purposes and Uses
: We only collect personal information about you where we have a legitimate reason for doing so and to further our mission to serve Parkinson’s disease patients and work with the Parkinson’s disease scientific research community. For each purpose for processing, in accordance with EU and UK law, we have identified a lawful basis for processing.
Contract
– We need to collect certain information for the purposes of performing a contract that we have entered into with you. For example:
• To administer our grant funding contracts.
Legitimate Interests
– We process individuals’ personal information in pursuit of our legitimate interests to:
• Respond to any queries or concerns sent to us;
• To manage the grant application process and make decisions around whether to award funding;
• Help maintain the security and performance of our Grant Portal.
Legal Obligation
– We are under a legal obligation to process certain personal information for purposes including:
• To comply with financial record keeping obligations in relation to recipients of grant funding.
Consent
– In some circumstances, we may ask you for your consent to process your personal information. This is usually to:
• Send you relevant information about our programs and services that you have signed up to receive;
• Use marketing and analytics cookies on our Grant Portal; and
Submission of the information listed above is voluntary; however, in order to be able to fully consider any application you make, most fields are required.
Sensitive Data
: Alongside the personal information listed above, we also ask in the Grant Portal that you provide us with demographic information (race, gender identity, disability status etc.) about yourself. These types of personal information are considered particularly sensitive under some laws, and so we make providing us this data completely voluntary, based on your consent. The purpose of collecting this data is to monitor the existence of any bias in the selection process by collecting, aggregating and analysing this information to try to ensure equality of opportunity and treatment.
Data Sharing
: We may share your personal data with the following categories of third party organisations:
• CAS, for the purposes of the joint administration of the ASAP funding initiative;
• External reviewers, for the purposes of reviewing research proposals and providing feedback; and
• Law enforcement authorities, courts, and other governmental authorities where required by law or to assert or defend our rights.
We will also share your personal information with carefully selected third party data processors/service providers who perform services on our behalf. For example, MJFF uses a third party, SmartSimple, to administer the information that is obtained through your use of the Grant Portal. In addition, we use third party website analytics providers, and DocuSign as our eSignature platform. These organisations will not use your personal information except to provide the agreed services on our behalf. We ensure that we have the required agreements in place to safeguard your personal information and all third parties are required to maintain the confidentiality of your information.
Where we share the personal information of individuals located in the EU or UK with other third parties located in the US or otherwise outside the EU or UK, we ensure that we implement appropriate transfer mechanisms to ensure that your personal information is adequately protected. This includes implementing standard contractual clauses.
Aside from the above, we do not sell, rent or otherwise give your personal information to third parties.
Retaining Data
: We only retain information for as long as is necessary to achieve our purposes, after which time it is securely destroyed. Your personal information will be retained in accordance with our Retention Schedule which outlines for how long we keep different types of personal information. Our retention periods are based upon the purpose for with the information is collected and used, taking into account legal and regulatory requirements to retain the information for a minimum period, good practice, and our legitimate interests.
Security
: Following login by an account holder, the associated grant-related information submitted by the user is collected, maintained, and disseminated through secure interfaces. Smart Simple and its hosting partners are SOC 2 complaint (SOC 2 is the most recognized compliance criteria for cloud vendors around the world). Furthermore, Smart Simple is compliant with the standards for PCI DSS Level 3, FIPS 140-2 encryption, and data in motion is encrypted using HTTP (Hyper Text Transfer Protocol) protocols combined with TLS (Transport Layer Security) ciphers to ensure security when transferring data. Information is also provided securely to the account holder, including the results of peer review, and the deliberations of the Grant Review Committee established by MJFF to review the grant application. Except for internal administrative purposes, the grant application is treated as confidential until an award is made. Upon award, the title, principal investigator name(s), abstract of the project, award amount are disclosed publicly.
Your rights
: Depending upon where you are located, you may have some or all of the following rights in relation to your personal information:
• ask for access to your personal information via a 'subject access request';
• ask for personal information we hold about you to be corrected;
• ask for your personal information to be deleted. This enables you to ask us to delete or remove your personal information where there is no good reason for us continuing to process it;
• object to the processing of your personal information where we are relying on a legitimate interest, and there is something about your particular situation which makes you want to object to processing it;
• ask for the processing of your personal information to be restricted. This enables you to ask us to suspend the processing of personal information about you; and
• ask for your personal information to be transferred to another company.
To protect your privacy and security, we will take certain steps to verify your identity before granting access to your information or complying with other requests. You will be asked specific questions, including full name, address, phone number, and, if applicable, credit card numbers and/or expiration date.
If you would like to exercise any of the above rights, you can do so by emailing privacy@michaeljfox.org or calling +1 212 509 0995.
Where we rely on consent to process your personal data, you have a right to withdraw your consent at any time. To withdraw your consent to receive marketing emails from us, you can visit your Profile Center via a "Manage My Preferences" link at the bottom of all Foundation emails.
Contacting Us
: MJFF values your comments and opinions. If you have comments, questions or concerns about our privacy policy or if you would like access to the personal information you have provided, contact us via grants@michaeljfox.org. Please allow 2-3 business days for a reply. When inquiries are emailed to us, the question/comment/opinions and the e-mail address information are stored so that an electronic response can be composed and sent.
You can also contact our Privacy Team using the details below:
privacy@michaeljfox.org
The Michael J. Fox Foundation for Parkinson's Research
Grand Central Station
P.O. Box 4777
New York, NY 10163-4777
To help facilitate the exercising of data protection rights by data subjects located in the UK and EU, we have appointed The DPO Centre Ltd and The DPO Centre (Europe) Ltd to act as our UK and EU Representatives, respectively.
Our UK Representative can be contacted using the following details:
The DPO Centre Ltd
50 Liverpool Street, London, EC2M 7PY
Phone: +44 203 797 1289
Email: eurep@michaeljfox.org
Our EU Representative can be contacted using the following details:
The DPO Centre (Europe) Ltd
Alexandra House
Ballsbridge Park, Dublin, D04C 7H2, Ireland
Phone: +353 1 631 9460
Email: ukrep@michaeljfox.org
Where you are located in either the UK or the EU, you also have the right to complain to your local data protection authority if you are unhappy with how we have processed your personal information. For example, in the UK this is the Information Commissioner’s Office who can be contacted via this link.
Conditions of Use, Notices, and Revisions
: From time to time, MJFF conduct internal audits of its information practices and reserve the right to make changes to this policy. Changes to this Policy are also made to comply with evolving legal and regulatory requirements. MJFF reserves the right to make changes to this Policy at any given time. We advise you to visit this page frequently to make sure that you are up to date with the latest changes. If at any point in time MJFF decides to make use of any personal information on file in a manner vastly different from that which was stated when this information was initially collected, the user or users shall be notified by email.
Last updated May 2024.
